Muko Aktiv e.V. - Association for the support of cystic fibrosis sufferers
Purpose of the association
- Creation of additional positions (mobile physiotherapy, dieticians, psychologists, social services)
- Legal advice (care allowance, Severely Disabled Persons Act)
- Further training (training of physiotherapists, training of internists, training of hospital staff (nursing staff), patient education)
- Improvement of technical equipment in outpatient clinics (lung function devices, physiotherapy aids, inhalers, etc.)
- Implementation of climate therapy
- Support for research projects in contact with research groups
- Support for existing self-help groups in Rhineland-Palatinate.
Founded: 1995
Register of associations: 90 VR 3068
Contact us
Address
Muko Aktiv e.V. - Förderverein zur Unterstützung von an Mukoviszidose Erkrankten
c/o Treffpunkt Marienborn
Woman Christiane Gerhardt
Am Sonnigen Hang 8-12
55127 Mainz